Children of Fallujah: Stillbirths, disabilities and deformities too distressing to describe

A child with a defect of the spinal cord, material from the spine outside the body. A baby with a terrible, vast Cyclopean eye. Another baby with only half a head, stillborn like the rest, date of birth 17 June, 2009. Yet another picture flicks onto the screen: date of birth 6 July 2009, it shows a tiny child with half a right arm, no left leg, no genitalia.

"We see this all the time now," Al-Hadidi says, and a female doctor walks into the room and glances at the screen. She has delivered some of these still-born children. "I've never seen anything as bad as this in all my service," she says quietly. Al-Hadidi takes phone calls, greets visitors to his office, offers tea and biscuits to us while this ghastly picture show unfolds on the screen. I asked to see these photographs, to ensure that the stillborn children, the deformities, were real. There's always a reader or a viewer who will mutter the word "propaganda" under their breath.

But the photographs are a damning, ghastly reward for such doubts. January 7, 2010: a baby with faded, yellow skin and misshapen arms. April 26, 2010: a grey mass on the side of the baby's head. A doctor beside me speaks of "Tetralogy of Fallot", a transposition of the great blood vessels. May 3, 2010: a frog-like creature in which – the Fallujah doctor who came into the room says this – "all the abdominal organs are trying to get outside the body."

This is too much. These photographs are too awful, the pain and emotion of them – for the poor parents, at least – impossible to contemplate. They simply cannot be published.

There is a no-nonsense attitude from the doctors in Fallujah. They know that we know about this tragedy. Indeed, there is nothing undiscovered about the child deformities of Fallujah. Other correspondents – including my colleague Patrick Cockburn – have visited Fallujah to report on them.

What is so shameful is that these deformities continue unmonitored. One Fallujah doctor, an obstetrician trained in Britain – she left only five months ago – who has purchased from her own sources for her private clinic a £79,000 scanning machine for prenatal detection of congenital abnormalities, gives me her name and asks why the Ministry of Health in Baghdad will not hold a full official investigation into the deformed babies of Fallujah.

"I have been to see the ministry," she says. "They said they would have a committee. I went to the committee. And they have done nothing. I just can't get them to respond." Then, 24 hours later, the same woman sends a message to a friend of mine, another Iraqi doctor, asking me not to use her name.

If the number of stillborn children of Fallujah is a disgrace, the medical staff at the Fallujah General Hospital prove their honesty by repeatedly warning of the danger of reaching conclusions too soon.

"I delivered that baby," the obstetrician says as one more picture flashes on the screen. "I don't think this has anything to do with American weapons. The parents were close relatives. Tribal marriages here involve a lot of families who are close by blood. But you have to remember, too, that if women have stillborn children with abnormalities at home, they will not report this to us, and the baby will be buried without any record reaching us."

The photographs continue on the screen. January 19, 2010: a baby with tiny limbs, stillborn. A baby born on 30 October, 2010, with a cleft lip and cleft palette, still alive, a hole in the heart, a defect in its face, in need of echocardiography treatment. "A cleft lip and palate are common congenital anomalies," Dr Samira Allani says quietly. "But it's the increased frequency that is alarming." Dr Allani has documented a research paper into "the increased prevalence of birth defects" in Fallujah, a study of four fathers "with two lineages of progeny". Congenital heart defects, the paper says, reached "unprecedented numbers" in 2010.

The numbers continue to rise. Even while we are speaking, a nurse brings a message to Dr Allani. We go at once to an incubator next to the hospital delivery room. In the incubator is a little baby just 24 days old. Zeid Mohamed is almost too young to smile but he lies sleeping, his mother watching through the glass. She has given her permission for me to see her baby. His father is a security guard, the couple married three years ago. There is no family record of birth defects. But Zeid has only four fingers on each of his little hands.

Dr Allani's computer files contain a hundred Zeids. She asks another doctor to call some parents. Will they talk to a journalist? "They want to know what happened to their children," she says. "They deserve an answer." She is right. But neither the Iraqi authorities, nor the Americans, nor the British – who were peripherally involved in the second battle of Fallujah and lost four men – nor any major NGO, appears willing or able to help.

When doctors can obtain funding for an investigation, they sometimes turn to organisations which clearly have their own political predetermination. Dr Allani's paper, for example, acknowledges funding from the "Kuala Lumpur Foundation to Criminalise War" – hardly a group seeking to exonerate the use of US weaponry in Fallujah. This, too, I fear, is part of the tragedy of Fallujah.

The obstetrician who asked to be anonymous talks bleakly of the lack of equipment and training. "Chromosome defects – like Down's Syndrome – cannot be corrected prenatally. But a foetal infection we can deal with, and we can sort out this problem by drawing a sample of blood from the baby and mother. But no laboratory here has this equipment. One blood transfer is all it needs to prevent such a condition. Of course, it will not answer our questions: why the increased miscarriages here, why the increased stillbirths, why the increased premature births?"

Dr Chris Busby, a visiting professor at the University of Ulster who has surveyed almost 5,000 people in Fallujah, agrees it is impossible to be specific about the cause of birth defects as well as cancers. "Some very major mutagenic exposure must have occurred in 2004 when the attacks happened," he wrote two years ago. Dr Busby's report, compiled with Malak Hamdan and Entesar Ariabi, says that infant mortality in Fallujah was found in 80 out of every 1,000 births, compared to 19 in Egypt, 17 in Jordan and only 9.7 in Kuwait.

Another of the Fallujah doctors tells me that the only UK assistance they have received comes from Dr Kypros Nicolaides, the head of Foetal Medicine at King's College Hospital. He runs a charity, the Foetal Medicine Foundation, which has already trained one doctor from Fallujah. I call him up. He is bursting with anger.

"To me, the criminal aspect of all this – during the war – was that the British and the American governments could not go to Woolworths and buy some computers to even document the deaths in Iraq. So we have a Lancet publication that estimates 600,000 deaths in the war. Yet the occupying power did not have the decency to have a computer worth only £500 that would enable them to say "this body was brought in today and this was its name".

Now you have an Arab country which has a higher number of deformities or cancers than Europe and you need a proper epidemiological study. I'm sure the Americans used weapons that caused these deformities. But now you have a goodness-knows-what government in Iraq and no study. It's very easy to avoid to doing anything – except for some sympathetic crazy professor like me in London to try and achieve something."

In al-Hadidi's office, there are now photographs which defy words. How can you even begin to describe a dead baby with just one leg and a head four times the size of its body?

Fallujah: A history

The first battle of Fallujah, in April 2004, was a month-long siege, during which US forces failed to take the city, said to be an insurgent stronghold. The second battle, in November, flattened the city. Controversy raged over claims US troops had deployed white phosphorus shells. A 2010 study said increases in infant mortality, cancer and leukaemia in Fallujah exceeded those reported by survivors of the atomic bombs dropped on Hiroshima and Nagasaki.

Sayef's story

For little Sayef, there will be no Arab Spring. He lies, just 14 months old, on a small red blanket cushioned by a cheap mattress on the floor, occasionally crying, his head twice the size it should be, blind and paralysed. Sayeffedin Abdulaziz Mohamed – his full name – has a kind face in his outsized head and they say he smiles when other children visit and when Iraqi families and neighbours come into the room.

But he will never know the history of the world around him, never enjoy the freedoms of a new Middle East. He can move only his hands and take only bottled milk because he cannot swallow. He is already almost too heavy for his father to carry. He lives in a prison whose doors will remain forever closed.

It's as difficult to write this kind of report as it is to understand the courage of his family. Many of the Fallujah families whose children have been born with what doctors call "congenital birth anomalies" prefer to keep their doors closed to strangers, regarding their children as a mark of personal shame rather than possible proof that something terrible took place here after the two great American battles against insurgents in the city in 2004, and another conflict in 2007.

After at first denying the use of phosphorous shells during the second battle of Fallujah, US forces later admitted that they had fired the munitions against buildings in the city. Independent reports have spoken of a birth-defect rate in Fallujah far higher than other areas of Iraq, let alone other Arab countries. No one, of course, can produce cast-iron evidence that American munitions have caused the tragedy of Fallujah's children.

Sayef lives – the word is used advisedly, perhaps – in the al-Shahada district of Fallujah, in one of the more dangerous streets in the city. The cops – like the citizens of Fallujah, they are all Sunni Muslims – stand with their automatic weapons at the door of Sayef's home when we visit, but two of these armed, blue-unformed men come inside with us and are visibly moved by the helpless baby on the floor, shaking their heads in disbelief and with a hopelessness which his father, Mohamed, refuses to betray.

"I think all this is because of the use by the Americans of phosphorous in the two big battles," he says. "I have heard of so many cases of congenital birth defects in children. There has to be a reason. When my child first went to the hospital, I saw families there with exactly the same problems."

Studies since the 2004 Fallujah battles have recorded profound increases in infant mortality and cancer in Fallujah; the latest report, whose authors include a doctor at Fallujah General Hospital, says that congenital malformations account for 15 per cent of all births in Fallujah.

"My son cannot support himself," Mohamed says, fondling his son's enlarged head. "He can move only his hands. We have to bottle-feed him. He can't swallow. Sometimes he can't take even the milk, so we have to take him to hospital to be given fluids. He was blind when he was born. In addition, my poor little man's kidney has shut down. He got paralysed. His legs don't move. His blindness is due to hydrocephalus."

Mohamed holds Sayef's useless legs and moves them gently up and down. "After he was born, I got Sayef to Baghdad and I had the most important neurosurgeons check him. They said they could do nothing. He had a hole in his back that was closed and then a hole in his head. The first operation did not succeed. He had meningitis."

Both Mohamed and his wife are in their mid-thirties. Unlike many tribal families in the area, neither are related and their two daughters, born before the battles of Fallujah, are in perfect health. Sayef was born on 27 January, 2011. "My two daughters like their brother very much," Mohamed adds, "and even the doctors like him. They all take part in the care of the child. Dr Abdul-Wahab Saleh has done some amazing work on him – Sayef would not be alive without him."

Mohamed works for an irrigation mechanics company but admits that, with a salary of only $100 a month, he receives financial help from relatives. He was outside Fallujah during the conflict but returned two months after the second battle only to find his house mined; he received funding to rebuild his home in 2006. He watches Sayef for a long time during our conversation and then lifts him in his arms.

"Every time I watch my son, I'm dying inside," he says, tears running down his face. "I think about his destiny. He is getting heavier all the time. It's more difficult to carry him." So I ask whom he blames for Sayef's little calvary. I expect a tirade of abuse against the Americans, the Iraqi government, the Health Ministry. The people of Fallujah have long been portrayed as "pro-terrorist" and "anti-Western" in the world's press, ever since the murder and cremation of the four American mercenaries in the city in 2004 – the event which started the battles for Fallujah in which up to 2,000 Iraqis, civilians and insurgents, died, along with almost 100 US troops.

But Mohamed is silent for a few moments. He is not the only father to show his deformed child to us. "I am only asking for help from God," he says. "I don't expect help from any other human being." Which proves, I guess, that Fallujah – far from being a city of terror – includes some very brave men.