Chronic Illnesss & Grief 


Sitting at the end of my bed, it suddenly thumps me across the chest like a ton of bricks. My lip trembles, I can feel the lump in my throat and I have to stop myself before the tears flow. I’m struggling to put on my socks and quickly I’m reminded that my life is not and never be what it used to be. It took me a while to grieve the loss of my former self, then even longer to realise that was what I was doing. Grieving. 
And just like grief , no matter how much time helps heal you are never truly done grieving. I have lost loved ones over the years, people very special to me and I think about them every day. Now that years have passed, it doesn’t hurt as much anymore to remember them, to think about them and the beautiful memories I shared with them. Still though, I am sometimes caught off guard, I see my nana’s favourite sweets in the shop and go to pick them up and then it strikes you like a lightning bolt. My nana is not here anymore. That’s when it aches the most, when just for a tiny second you forget that loss. 
It is a similar process with my condition, now that I have dealt with it for nearly 10 years it has become easier to accept my limitations, but every once in a while I long for what I had, I forget that I have limitations and as soon as I quickly remember the things I can’t do…That is when the lump hits your throat and your eyes water because all over again it’s that very real and raw pain, it’s the first time hearing the news, it’s the hurt and the confusion all once more and it’s heart-breaking.  
It is a different kind of grief, it almost feels like a selfish one but it is there and I think most people with a chronic illness face it. We go through the stages Denial, Anger, Bargaining, Depression and Acceptance but it tends to be a never ending cycle just as our illness is. 
All stages come in quick succession of the other, you deny your illness pushing yourself to your absolute limit and then you feel such anger when you struggle to keep up with the others or perform simple tasks. Next comes the bargaining, if I just got heather, exercised more, eat less crap, meditated more….but no matter what you do your illnesses won’t be gone. The realisation of that brings on the depression, the not feeling good enough, the feeling useless and helpless until finally and thankfully you make it full circle to acceptance again. Each time I go through the cycle, I make it quicker to acceptance and it lasts longer. Not to say I am happy with my illness but I’m fine with it. It is part of me now and for the most part I accept that. The same way that whilst I miss my grandmother with all my heart , I have come to terms with her loss. 
When I think of my grandmother and how much I miss her, I also think of how happy I was to know her in the first place, to have been loved by her and have wonderful memories that no one can take away from me. When I think of my Rheumatoid Arthritis , I have to see some positive in it too. I have more than I have lost. My illness has changed me but it has not reduced me. It has made me more empathic to others, made me stronger, a fighter and most importantly it has shown me just how much my family and friends love me. 
Sometimes I will grieve my old body, I will grieve the normal pain free life I could have had but for the most part I will be out there making the most of what I have got, which thinking about it, is more than enough. 

3 thoughts on “Chronic Illnesss & Grief 

  1. Another fantastic article which perfectly sums up difficulty we face with acceptance . Receiving a diagnosis is simply the start of a new chapter in our lives ,leaving behind the idea of our old , pain free “normal” lives is unfortunately a much more difficult thing to do.

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  2. I agree with everything you said. The problem I have is not with me accepting I’m chronically ill, it’s with my family accepting that this is now my life. For every door closed, another one opens. I just wish my family would take the time to educate themselves of the long list of my diagnoses. Take care. XX 🙂

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